Category: Patient Stories
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Our Arizona Story
3TV Phoenix and Fox 11 Tucson recently aired a story about our work with CCSVI here in Arizona along with the very personal story of Ryan Noreen, one of our patients willing to talk about his experience with the liberation procedure. As a scientist himself, Ryan is a credible source for the media. Of course,…
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It can get ugly
Historically, scientific advances are made before society can conduct meaningful ethical and moral discussions about these advances. However, such discussions are crucial to setting policies that balance individual and public protections with the use of technology in medicine. (Sonia Y. Hunt, Ph.D. (Write Science Right) © 2008 Nature Education).
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Responsiveness is Key for Health Practitioners
For many with Multiple Sclerosis, the do exhaustive research about CCSVI, check references, talk to other patients, engage in social media and attend events. Once they make a decision to move forward with diagnosis and treatment for CCSVI they want answers fast. This story highlights the need for health care professionals to react quickly when…
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ABC News Reports on Clogged Vein Theories
Almost six years after she was diagnosed with multiple sclerosis, Sharon Richardson heard that blockages in neck veins draining blood from her brain could have triggered the debilitating disease, which is marked by fatigue, weakness and pain. She quickly took to the web to investigate the theory, proposed by Dr. Paolo Zamboni, a vascular surgeon…
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Randy’s story
[youtube]http://www.youtube.com/watch?v=Ip86TzgBzxA[/youtube] Randy became a part of our extended family when he visited us from Canada a few weeks ago to undergo the CCSVI screening and liberation procedure. We’re beginning our own video documenting of our patients who are anxious to share with the world their stories and their progress. Randy has suffered from MS for…
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Olga’s story
The beautiful Olga Krejci is one of our patients who was diagnosed with MS in January 2010. A full year later she walked into our lives as a CCSVI candidate. Like many, Olga needed to find a way to pay for her procedure and so she turned to www.caringbridge.org to help her not only set…
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A stitch in time saves…lives?
This is an inspiring story about Sherry Read, a woman who was diagnosed with MS at the age of 23. Not only does this show the change and happiness that CCSVI can bring to someone’s life, but it also shows how important family and community can be when you are on the road to recovery.…
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A husband and wife’s journey
[youtube]http://www.youtube.com/watch?v=2ahkh1uH7aY[/youtube] Here, YouTube friend, @gekiryudojo documents the journey of he and his wife (who also suffers from MS) through their liberation procedure performed in Nis Serbia.
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Matthew’s One Month Update
[youtube]http://www.youtube.com/watch?v=O6jf8o8z7Pk[/youtube] Matthew a Canadian CCSVI patient, talks about his one-month update on how he’s doing post-liberation. Although we didn’t see Matthew ourselves, we do see many patients from Canada each week. His video stresses the importance for follow up care. We recommend that patients have a follow up doppler exam one month, six months and…
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Using humor for a serious subject
Stacy, A new friend we met on Facebook is taking a unique and humorous approach to dealing with her condition. She has created a t-shirt called “got brain drain.” Restricted blood flow in Multiple Sclerosis patients is thought to be the leading cause for the condition CCSVI. She is donating a portion of the sales…